April is Autism Acceptance Month.
Note: This blog post uses identity-first language which is preferred by the autistic self-advocacy movement. "Autistic" is capitalized to represent the community, while "autism" is kept lowercase to represent the neurological development pattern itself.
Autism Acceptance Month was started in 2011 by Paula Durbin Westby as a response to "ignorance, prejudice, fear, and hysteria about autism and autistic people." Autism Acceptance Month spreads the word that autism is both a neurological disability in our society, and also a natural part of human diversity, and centers the voices of Autistic people in the conversation about autism. In 2013, the Autistic Self-Advocacy Network turned Autism Acceptance Month into a national observance and launched the Pledge for Autistic Inclusion. In honor of Autism Acceptance Month, here are seven books about autism, as recommended by #ActuallyAutistic people; most of which are written and edited by Autistic authors, or otherwise feature the voices of actual Autistic people. Are you more of a fiction reader? Check out our list of novels by Autistic authors.
What Does Autism Mean?
We're Not Broken: Changing the Autism Conversation by Eric Garcia
Eric Garcia, an Autistic journalist and former editor at the Washington Post, discusses the social and policy gaps that exist in supporting people on the autism spectrum. Garcia explores how it is not Autistic people who are broken, but rather the systems which have never been designed with the Autistic community in mind. Garcia platforms the voices of all types of Autistic people, from those with higher support needs, to Autistic people of color, to LGBTQ Autistic people; allowing them to articulate their own needs and speak for themselves.
Unmasking Autism: Discovering the New Faces of Neurodiversity by Devon Price
Dr. Devon Price, an Autistic psychologist, brings to light the phenomenon of masked autism: Autistic people who put in a tremendous effort to "mask" and hide that they are Autistic from the people around them, sometimes doing so well as to evade diagnosis and not even realize themselves that they are Autistic. Dr. Price describes how detrimental masking can be to the mental health of Autistic people, and lays down a framework for Autistic readers to "unmask" and embrace their true selves. While the target audience is Autistic people, anyone can learn a tremendous deal about autism through reading Dr. Price's discussions of mental health, stigma, and neurodiversity.
This anthology of essays, collected by the Autistic Women and Non-Binary Network, is targeted at the parents of Autistic children. In each essay, an Autistic adult addresses parents of Autistic children and shares what they wish their own parents had known about autism and done differently in raising them. The set of authors is astoundingly diverse, showcasing the writing talent of Autistic women of color, LGBTQ Autistic women, and non-binary Autistic people. Essays like "Change the World, Not Your Child" by Lei Wiley-Mydske focus on parents as advocates, while "Empathy and Non-Verbal Cures" by Dusya Lyubovskaya gives more practical advice.
Uniquely Human: A Different Way of Seeing Autism by Barry M. Prizant
Barry Prizant, an allistic (non-autistic) speech-language pathologist, discusses new ways for parents and family members who support Autistic children to approach their Autistic loved ones. Instead of viewing autistic behaviors as a checklist of symptoms to be eliminated, Prizant helps allistic people think about things from the Autistic perspective, and encourages allistic family members to embrace their Autistic loved ones for who they are; and see how many things Autistic people do are coping mechanisms for dealing with a world that is only built for allistic people. Prizant offers parents better and more effective methods for supporting their Autistic kids which build on their strengths and lead to better-behaved children and a better quality of life.
Autistic Voices
Camouflage: The Hidden Lives of Autistic Women by Sarah Bargiela
Sarah Bargiela, an allistic (non-autistic) clinical psychologist, interviews Autistic women about their experiences and how being a woman has affected their experiences of autism and underdiagnosis. Their stories are illustrated in a charming style that makes even the most clinical information accessible and easy to understand. The three Autistic women in the book are amalgamations of stories from many Autistic women who Bargiela interviewed. Painted most clearly is the way that patriarchal gender norms pushed onto women make life especially hard for Autistic women, who face increased pressure to mask their Autistic traits and navigate more complicated, exhausting, and confusing social expectations which are placed on women.
Gender Identity, Sexuality and Autism: Voices From Across the Spectrum by Eva A. Mendes
Eva Mendes, an allistic (non-autistic) relationship therapist specializing in clients on the autism spectrum, interviews Autistic people from across the LGBTQ community about their lives and experiences. The personal narratives of interviewees are shared verbatim, allowing LGBT Autistic people to tell their stories in their own words.
Autism in Heels: The Untold Story of a Female Life on the Spectrum by Jennifer Cook O'Toole
Jennifer Cook O'Toole, known for her critically-acclaimed AsperKids children's book series and her appearance as the on-screen autism expert on Netflix's Love on the Spectrum US, opens up about her own life as a woman on the autism spectrum who was diagnosed at age thirty-five. O'Toole's memoirs are not just a run-of-the-mill educational story on autism, but a love letter to womanhood and an exploration of gender in American society. O'Toole shares stories of her work as a school teacher, a domestic violence counselor, a professor, a mother of three Autistic children, an author, and as a survivor of domestic violence.
- Welcome to the Autistic Community is a free online book written in plain language for Autistic people to learn about what being autistic means, and for allistic (non-autistic) people to better understand autism. Their website also has resource directories and a page on resources for being an ally to Autistic people.
- The Autistic Self-Advocacy Network (ASAN) is the leading advocacy organization fighting for the rights of Autistic people in the United States. ASAN believes that the goal of autism advocacy should be a world in which Autistic people enjoy equal access, rights, and opportunities. In addition to their advocacy work, ASAN also publishes books about autism and has an incredible free online advocacy resource library.
- The Autistic Women & Nonbinary Network (AWN) provides community support and resources for "Autistic women, girls, transfeminine and transmasculine nonbinary people, trans people of all genders, Two Spirit people, and all people of marginalized genders or of no gender." AWN has created amazing "welcome packets" for newly diagnosed Autistic people, as well as one for parents of newly diagnosed Autistic children. They also publish articles on topics like the intersectations of race and autism.
- The Philadelphia Autism Project is the leading organization supporting Autistic individuals and their families in Philadelphia. They provide education, a resource hub, community connections, and seed funding for organizations and programs. They have a directory of local organizations broken down by neighborhood, run the Community Autism Peer Specialist program, and before the COVID-19 pandemic had partnered with the Free Library on a cooking with confidence program.
- Neurodiversity Facts and Myths Primer prepared by the Thinking Person's Guide to Autism blog is a must-read for anyone new to the concept of autism acceptance and neurodiversity.
- "Don't Mourn For Us" by Jim Sinclair, the essay often credited as launching the modern Autism Rights Movement.
- Even more books on Autism Acceptance in our regularly updated Autism Acceptance book list.
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